ADD – what’s in a NAME?


by Madelyn Griffith-Haynie, CTP, CMC, ACT, MCC, SCAC

Graphic of musical notes on a rainbow colored wavy scale, to reference the fact that the quote is from the lyrics of a song by The Beatles
“Her name was McGill, she called herself Lil,

but 
everyone knew her as Nancy” ———————————————————————————————————–

Yeah, well Rocky Racoon’s lady love had nuthin‘ on ADD!

—————————————————————————————————————–

That cluster of symptoms now known “officially” as Attention Deficit Hyperactivity Disorder has has been known by more names than almost any other disorder in the DSM* – maybe more than any disorder in the DSM*.

  • MBD: Minimal Brain Damage;
  • HRC: Hyperkinetic Reaction of Childhood;
  • ADD: Attention Deficit Disorder;
  • AD/HD:  Attention-Deficit / Hyperactivity Disorder
  • ADHD: Attention Deficit Hyperactivity Disorder

How come?  And why should we care?

————————
*DSM: Diagnostic & Statistical Manual,
published by the American Psychological Association

What’s in a name?

A LOT, actually.

Did you know that one of the purposes for names – all nouns, in fact – is to give us a kind of mutually accepted code word to conserve brain resources for more valuable work?

That little tactic streamlines communication.

Who wants to spend all of our time defining the meaning of the nouns we use?  Right? Don’t we wanna’ move right on to the concept we want to communicate with those nouns?

Sure we do.  So our brains skip merrily over those “code words” almost as soon as they’re defined. No sense spending brainpower there — we already know what that means!  

Neat trick, huh?  

Anybody see the problem with that?

If we’re, essentially, unconscious about the terms we use to define things, we may both (to misquote the old song) say “po-tay-to” or both say “po-tah-to” — and be talking about two different things!  

And the more specific the terms SEEM to be,
the less apt we are to wonder 
about what we mean by them!

Let’s hear it for linguistic specificity

The above dynamic makes things difficult enough in everyday communication, but when we’re talking about a book that doctors will use to determine diagnoses and treatment protocols, we have to think l-o-n-g and h-a-r-d about the implications of the terms we assign and the decisions we make.

That’s why you’ll never catch me using an “H” in any name used to refer to the general cluster of symptoms that was once officially called ADD — unless I am specifically referring to gross motor hyperactivity!  I will always refer to this particular attentional disorder as “ADD” rather than the version with the “H.”

Yes, I’m well aware that the “official” name is ADHD these days, and I believe that is a naming convention that is beyond dangerous!!

Because I know that as soon as doctors who aren’t well-versed in ADD start looking at that “H,” they’ll start looking for what they consider to be hyperactivity as diagnosticand I know what will happen next:

  • They’ll miss most of the hypo-actives,
  • They’ll miss most ADDults, and
  • They’ll miss a large majority of women and girls with ADD (whose “hyperactivity” looks very different from what doctors are used to seeing in boys).

And MOST doctors are not well-versed in ADD, by the way.

Think I’m Splitting Hairs? Over-reacting?

In other posts on this site, I tell you how an entire generation of ADDers was totally dismissed because of a similar “unconscious” classification that happened with the DSM-II, when child psychology was eager to differentiate itself from adult psychology in the minds of the public.

The advocates for child psychology won the coin toss for “MBD,” which was renamed HRC in that particular version, Hyperreactive Disorder of Childhood.

Over twenty years later, there are still doctors who claim to treat ADD who haven’t read the memo that it does NOT go away at puberty, and more than a few who look to gross motor hyperactivity as a litmus test.

Since I happened to be one of those whose life has been FAR more difficult than it had to be as a result of that “little” oversight, I have a vested interest in seeing that it doesn’t happen to YOU or anyone you love!

A little thinking-it-through goes a l-o-n-g way.
Unfortunately, FAILURE to think things through goes FARTHER!!!

Interested in reading more?

Check out The Top Ten Stupid Comments by [supposed] ADD Professionals.

Be SURE to scroll down to read the comments to that article, by the way.  There are a couple of MDs who were willing to go on record with their reaction to the comments made by their colleagues (and quite a few more who gave me the “thumbs up” by private email.)

Related articles on ADDandSoMuchMore.com:

(Articles below set to open in a NEW window/tab – close THAT window when done. Blame WordPress glitches if an article below opens in this window – in that case, use your browser’s back button to return to this page!)

Some articles in the ADD Overview series:

Some articles in the Attention series:

Some articles in the Differential Diagnosis series:

Some articles about meds/non-meds, diagnosis & doctors:

Similar articles from mentees and students:

11 Responses to ADD – what’s in a NAME?

  1. Pingback: Variations on ADD-ADHD | ADD . . . and-so-much-more

  2. Pingback: When you are NEW to ADD | ADD . . . and-so-much-more

  3. Pingback: If I should die . . . | ADD . . . and-so-much-more

  4. Kyla Matton Osborne says:

    I completely agree that doctors are generally not well informed about ADHD. But I do prefer to leave the “H” in because the flip-side of the hyperactivity is poor impulse control. And often, in girls like my daughters, that is the first symptom that really looks like a symptom.

    A lot of the other struggles they go through daily can be written off by teachers and doctors. But that impulse control, it’s usually a significant enough issue that they can’t explain it away.

    Liked by 1 person

    • Good point, Kyla, and thanks for reading and ringing in – but why not ADID then? Impulsivity is believed to be a factor of impairments in the volitional control of Attention (a cognitive/behavioral presentation), and we DO see it frequently in ADD (but not always, as with other forms of hyperactivity).

      My point was that we need a naming that doesn’t confuse the non-expert doctors (i.e., “the doctors down the street” that most people will see for dx and treatment). Even “AD/HD” was better, IMHO – because it forces them to stop and actually think rather than assuming they know.

      I’m so glad to hear from an involved, proactive Mom and that you got your girls diagnosed. I SO wish my own mother had known enough to do that for me. My own dx came at 38 (the average age for most females, btw.) Do you follow Kathleen Nadeau and/or Pat Quinn. They specialize in ADD in woman and girls.

      Thanks again for adding to the content here. MUCH appreciated.
      xx,
      mgh

      Like

  5. Pingback: ADD – what’s in a NAME? – Dazzling Zebra

    • How WONDERFUL of you to reblog this one – the first ever that anyone has. God bless you.

      Since ADD has become the butt of so many jokes, even by supposed educational “professionals” (including Sir Ken Richardson in, of ALL things, “Changing Educational Paradigms,” – my article taking him to task HERE) I think an entirely new name might help more people pursue diagnosis and treatment A LOT!

      In any case, that “H” needs to GO!
      xx,
      mgh

      Like

  6. Hi, this is a great piece and I am off to read some of the other pointers you have given (I think I found you on a fb thread but can’t remember which one!) Have pinned and also shared this link on my Pain Pals regular feature Monday Magic – Inspiring Blogs for You! So pleased to connect and look forward to learning more, C x

    Liked by 1 person

    • Thank you SO much, Claire, for reading, for commenting, for pinning, and for the Monday Magic share. Pleased to connect as well. I’ll be over later tonight to check out more of your site.
      xx,
      mgh

      Liked by 1 person

  7. Pingback: Monday Magic – Inspiring Blogs for You! | Pain Pals

    • WHAT a day – I am still working my way down the wonderful comments, approving and responding, and just came across the notification of your generous link to this page. Thank you SO much – and sorry that Monday has come and gone (midnight here) before I responded to tell you how much I appreciate your support.
      xx,
      mgh

      Liked by 1 person

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