November 24 is N-24 Awareness Day



A SHOT at Fixing Broken Sleep Clocks

by Madelyn Griffith-Haynie, CTP, CMC, ACT, MCC, SCAC
Another article in the Sleep Series

Nov24~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
“Too many people don’t care what happens

so long as it doesn’t happen to them.”
~ William Howard Taft

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Your chance to step up and make a difference

We have known for DECADES that as many as three quartersof those of us here in “Alphabet City ~ 75% ~ have chronic problems with sleep and sleep timing.

Many of us have trouble falling asleep almost every night — until and unless we are, literally, exhausted.

Some of us continue to have trouble letting go of the day even then.

Almost all of us, EVEN when we are well rested, struggle to come to alertness when we awaken, regardless of what time of day that might be — frequently for well over an hour or more after first opening our eyes.

Our eyes may be open, but our brains are still half-asleep
— almost every single “morning” of our lives —

Were you aware that, for longer than the Baby-Boomer generation has been ALIVE, there has been only asmall pocket of concerned individuals — dismissed as mavericks, complainers, enablers, alarmists, incalcitrant slug-a-beds, fringe-scientists — who have been interested enough in the quality of the LIVES of those who were so affected to lobby for efforts to understand why?

As I wrote in materials for the world’s first ADD-specific coach trainingback in 1994, almost 20 years ago now with numbers like 75%, if this were heart disease (or any other population), I’ll bet you that MOST of the scientific and medical community would have been ON it!

By supporting the recently formed non-profit, Circadian Sleep Disorders Network, together we can finally CHANGE that sad reality.

Remember: links on this site are dark grey to reduce distraction potential
while you’re reading. They turn red on mouseover
Hover before clicking for more info

Broken ClockChronorhythm disorders – the disorders of sleep timing – have long been the unloved step-child of sleep medicine.

ALL OVER THE WEB, and in the sleep disorder literature itself, you will read that “the most common sleep disorders include insomnia, sleep apnea, restless legs syndrome, and narcolepsy,” which only serves to underscore how little research has been done on chronorhythm disorders. 

Medical Science turns a BLIND eye

Tossing the sleep timing struggles into the category of “insomnia”
blaming sleep struggles on poor sleep hygiene —
is casting a net too widely to expect to catch much of anything useful.

  • In the 25 years I have been searching for research or information about sleep timing problems with a personal vengeance, I have found precious little to help me, enlighten me or encourage me – because I am not blind.
  • I HAVE, however, encountered many hundreds of other sighted individuals struggling with sleep timing – and I am hearing about still more almost every single day.
  • I am not looking particularly hard — I am simply looking at what is clearly there for ANYONE to find.  (But then, of course, they’d have to take a serious look at that much maligned “anecdotal evidence” science finds so repugnant!)

As a REAL question, WHY haven’t they looked?

Sleep timing disorders are not only NOT the result of a lack of will-power or volition, they are NOT a problem confined to an isolated community of blind sufferers – who cannot SEE to rephase to light.

Circadian Struggles It’s long past time WE were invited to the sleep disorders table!

Except for the handful of sleep specialists, MOST doctors (and shamefully fewer Coaches, given my position as a pioneer in the coaching industry and the length of time I have been sounding the alarm) are even aware of the existence of this category of sleep disorders.

The few who are aware of them are not aware enough to recognize chronorhythm destabilization in what their patients (or clients) say about their sleep habits – if they even ASK about sleep habits!

  • Even the few doctors and coaches who ARE sleep-literate know little about what to DO to restabilize circadian rhythms — because NOBODY really does.
  • The relatively new Non-Profit organization, the Circadian Sleep Disorders Network was formed to change that unconscionable reality.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
This is their Mission:

“Circadian Sleep Disorders Network is a non-profit organization dedicated to improving the lives of people with chronic circadian rhythm disorders.

We aim to increase awareness within the medical community and among the general public, to provide emotional support and practical ideas for people living with these disorders, to encourage research into circadian rhythms, and to advocate for accommodations in education and employment for people with circadian rhythm sleep disorders.”
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Why YOU need to join

Becoming a member is a NO BRAINER if you (or anyone you care about) struggle with earth-appropriate sleep timing issues.

HOWEVER, you don’t have to be suffering yourself to be a BIG help
to the many of us who are, simply by adding your name to the
CSDN membership roster.

A significantly large membership roster will help us demonstrate the size of the problem and the level of interest to the rest of the sleep-disorders community, the general public, and our law-makers – especially since our difficulties with sleep have not been factored into the sleep disorder statistics appropriately (or much at all, actually!)

  • You can join, helping to change the quality of many lives, for a donation of as little as FIVE dollars
  • I would hope that those of you who can possibly afford it will send the regular membership fee of thirty dollars
    (clicking the button to add even a small additional donation at the same time will help even more).
  • You can also join as a Sustaining Member for $75
  • Your membership fees help pay expenses as they lobby for awareness, research and change. CSDN needs YOUR support to be able to fund their efforts on behalf of ALL of us.

Recoiling from Révèle

bugleI urge ANYONE who has trouble falling asleep at night, frequently sleeps through alarms, repeatedly “hits the snooze,” and/or finds it difficult to come to alertness in the morning to explore CSDN’s amazingly informative (and growing) website.

Sign up for membership to join them in their efforts.
That will get you the keys to their kingdom.

Parents and partners who start every day screaming REVELE BOZO – get your @#$% patootie OUT of bed! will probably be stunned at some of the information you will discover on the website of the Circadian Sleep Disorders Network site.

Not only THAT, what you learn will no doubt transform mornings at your house – to everyone’s benefit!

As Peter Mansbach, the founding President of the Circadian Sleep Disorders Network, said during his extremely informative presentation to the 2013 Narcolepsy Network Conference.

We need to raise awareness, among doctors, school personnel, employers, and the public. We need to get accommodations for people with these disorders, at work and at school.

We need more research to understand the causes and to improve treatment.

By now most doctors have at least heard of narcolepsy [and most of the other non-chronorhthm sleep disorders]. Time to diagnosis has decreased. The public is increasingly aware. Most schools will provide some accommodations, and increasingly, workplaces do also.

That is not yet the case for circadian rhythm sleep disorders.

AND YET, 75% of the ADD population struggles with sleep in a manner that strongly suggests some form of circadian rhythm disruption.  WE NEED YOUR HELP to change these sad statistics.

blackANDwhiteZs

Check them out!

Among the MANY resources available on the website of CSDN, you’ll find a two-sided brochure with a clear explanation of Circadian Struggles that they encourage everyone to download, print and distribute.

Take it to your doctors, request that they read it,
then ask them to put it in your file.

The Design of the ADDandSoMuchMore Sleep Series

The Sleep Series is designed to explore and explain sleep basics we ALL need to know and understand to remain healthy and effective throughout our lives — information that MOST of your doctors, shrinks and coaches don’t know about, effectively, one-third of our entire lives!

For example, the sleep-normal cycling of the sleep stages, which will underscore the importance of allowing yourself enough time to cycle through them all (which will help to explain WHY some amounts of sleep make it harder to wake up at a certain time, and how to tweak your sleep schedule to make it easier). 

Future articles in the Series will take a closer look at what happens when chronorhythms destabilize and some of the warning signs that you are dancing to close to the destabilization edge.

Keep an eye out for “Up all Night? Sleep away the Day?” – Part-I of the article that will explain the dynamics of Circadian Rhythm Sleep Disorders, outlining some of the therapies currently suggested to help you work with destabilized sleep timing.

ALL right here at no charge what-so-ever!
All YOU have to do to begin to change the quality of your energy and your LIFE
is show up and read — SO STAY TUNED.

Because the quality of our waking hours is a product of the quality of our sleep!

Please reblog, and share this article with your social networks TODAY.
“Liking” the page will help it get found in the search engines too.

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As always, if you want notification of new articles in the Sleep Series – or any new posts on this blog – give your email address to the nice form on the top of the skinny column to the right. (You only have to do this once, so if you’ve already asked for notification about a prior series, you’re covered for this one too). STRICT No Spam Policy

Want to work directly with me? If you’d like some one-on-one (couples or group) coaching help with anything that came up while you were reading any of the articles of this Series, click HERE for Brain-based Coaching with mgh, with a contact form at its end, or click the E-me link on the menubar at the top of every page. Fill out the form, submit, and an email SOS is on its way to me; we’ll schedule a call to talk about what you need. I’ll get back to you ASAP (accent on the “P”ossible!)
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You might also be interested in some of the following articles
available right now – on this site and elsewhere.

For links in context: run your cursor over the article above and the dark grey links will turn dark red;
(subtle, so they don’t pull focus while you read, but you can find them to click when you’re ready for them)
– and check out the links to other Related Content in each of the articles themselves –

Related articles right here on ADDandSoMuchMore.com
(in case you missed them above or below)

About Comorbidities

N-24 Day Posts from others — THANKS!

Chronorhythm Info Sites & other Related Articles

BY THE WAY: Since ADDandSoMuchMore.com is an Evergreen site, I revisit all my content periodically to update links — when you link BACK, like, follow, or comment on the article, you STAY on the page. When you do not, you run a high risk of getting replaced by a site with a more generous come-from.

A CALL TO ACTION aimed straight at YOU!

Chronorhythm Sleep Disorders are SERIOUSLY overlooked & understudied

~ PLEASE ~
Help spread the word about the non-profit Circadian Sleep Disorders Network
— reblog, link, talk about it on chatlists & add your name to its membership rosters TODAY
THE LIVES YOU TRANSFORM will most definitely be somebody’s Beloved.
~ Thank you! ~

About Madelyn Griffith-Haynie, MCC, SCAC
Award-winning ADD Coach Training Field founder; ADD Coaching field co-founder; [life] Coaching pioneer -- Neurodiversity Advocate, Coach, Mentor & Poster Girl -- Multi-Certified -- 25 years working with EFD [Executive Functioning disorders] and struggles in hundreds of people from all walks of life. I developed and delivered the world's first ADD-specific coach training curriculum: multi-year, brain-based, and ICF Certification tracked. In addition to my expertise in ADD/EF Systems Development Coaching, I am known for training and mentoring globally well-informed ADD Coach LEADERS with the vision to innovate, many of the most visible, knowledgeable and successful ADD Coaches in the field today (several of whom now deliver highly visible ADD coach trainings themselves). For almost a decade, I personally sponsored and facilitated seven monthly, virtual and global, no-charge support and information groups The ADD Hours™ - including The ADD Expert Speakers Series, hosting well-known ADD Professionals who were generous with their information and expertise, joining me in my belief that "It takes a village to educate a world." I am committed to being a thorn in the side of ADD-ignorance in service of changing the way neurodiversity is thought about and treated - seeing "a world that works for everyone" in my lifetime. Get in touch when you're ready to have a life that works BECAUSE of who you are, building on strengths to step off that frustrating treadmill "when 'wanting to' just doesn't get it DONE!"

8 Responses to November 24 is N-24 Awareness Day

  1. Pingback: Chrono-Crazy: N-24 vs. DSPS | ADD . . . and-so-much-more

  2. Pingback: Sleeping with the Enemy: Mom’s N-24 | ADD . . . and-so-much-more

  3. Pingback: N-24 Awareness Day is almost upon us | ADD . . . and-so-much-more

  4. Pingback: TIME to think about Group Coaching | ADD . . . and-so-much-more

  5. Hi Madelyn,

    A bit late to the party, here is my Facebook “status” from Nov-24:

    Today, November 24, is N24 AWARENESS DAY 2013. N24, short for Non-24-Hour Sleep-Wake Disorder, is, among sighted people, the most debilitating of the circadian rhythm disorders. (Among the blind it has a different cause and is most often treatable.) I have “only” its little brother, DSPS/DSPD, which gives me just an inkling of how N24 is. What we have in common is fatigue and the fact that our sleep patterns are abnormal and inflexible.

    People with N24 cannot keep to the 24-hour day on this planet. While normal people usually are awake for about 16 hours and sleep for about 8 hours, N24 people are awake for about 17 hours and sleep for about 9 hours (plus/minus) for a “day” much longer than 24 hours. That means that if they woke up at 8 a.m. today, they’ll awaken at 10 tomorrow, noon the day after, 2 p.m. the day after that and so on around the clock. This makes them have great difficulty getting an education; it generally makes them unemployable; and it makes it nearly impossible for them to make and keep any appointment.

    Today is AWARENESS day. Please don’t judge people who have invisible disabilities; they have enough to struggle with as it is. Thanks!

    Like

  6. Pingback: Madelyn Griffith-Haynie | N24 Awareness Day

  7. I want to share the comment I have attempted to leave on each of the sites listed as related content:
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    November 24th is N-24 Awareness Day and we need YOUR help!

    YOUR article is linked as Related Content to my 2013 N-24 post — which also contains, among other useful sleep disorders information, links to a relatively new non-profit, The Circadian Sleep Disorders Network [CSDN]. Please take the time to check it out and share the information with your clients and readers. THANKS.
    ~~~~~

    N-24 is one of the disorders of sleep TIMING — Delayed (and Advanced) Sleep Phase Disorders are 2 more. In N-24 a person’s brain and body, essentially, insist that the day is longer than 24 hours, so sufferers are unable to sleep until later and later each night — how *much* later each night depends on how much longer their “body-day” is than the standard 24 hour day here on earth.

    As you can imagine, sufferers who are ABLE to maintain employment live seriously sleep-deprived and suffer the health consequences, since they cannot fall asleep early enough to be rested before morning comes and it’s time to get to work!

    UNFORTUNATELY, N-24 is (almost always) reported to affect primarily the blind, who cannot see to rephase to light . The SAD reality is that is has rarely been **studied** in the MANY individuals in the sighted community — so there is currently NO scientific basis for that rumor, contrasted with a great deal of anecdotal report that it is inaccurate.

    CSDN hopes to increase the availability of Circadian Sleep Disorders information on the web while correcting the misinformation (EVEN on almost every other sleep site that hasn’t yet responded). They are lobbying for more research leading to more effective treatment options for the ENTIRE sleep disorders community, with a focus on disorders of sleep-TIMING.

    ~~~~~
    xx,
    mgh
    (Madelyn Griffith-Haynie – ADDandSoMuchMore dot com)
    – ADD Coach Training Field founder; ADD Coaching co-founder –
    and SIGHTED N-24 sufferer for 65 years now**
    “It takes a village to educate a world!”

    **WELL, almost! – 11/29/13 – the day following Thanksgiving this year
    HAPPY BIRTHDAY TO ME!!
    If you’d like to send me a gift, please join CSDN and leave a comment below telling me you did!
    (reblogs & shares work too, for those of you who are seriously broke!)

    Like

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